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Autism


Nick Soapdish

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It reminds me of that nobhead in the paper a few years back whinging that he couldn't get a PS4 at launch (this is how long ago it was), and saying his 3 year old will be gutted that he won't be able to play the new Call Of Duty or something. 

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48 minutes ago, Michael_3165 said:

Whilst autism has increased over the years due to awareness

Autism hasn’t increased. Diagnoses have. 
 

[quote]there are other issues that look like autism and these can make diagnosis very tricky. E.g. trauma history, personality disorder etc[/quote]
Its almost as if there should be specialists with years of training who are the ones doing the diagnosing. 

Edited by Keith Houchen
Fucking quote tags
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1 hour ago, Keith Houchen said:

Autism hasn’t increased. Diagnoses have. 
 

[quote]there are other issues that look like autism and these can make diagnosis very tricky. E.g. trauma history, personality disorder etc[/quote]
Its almost as if there should be specialists with years of training who are the ones doing the diagnosing. 

Yep, it’s like my old man once grumbling that people didn’t have peanut allergies when he was a kid and I said no, people just died without realising they had an allergy. 

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4 minutes ago, Hannibal Scorch said:

Yep, it’s like my old man once grumbling that people didn’t have peanut allergies when he was a kid and I said no, people just died without realising they had an allergy. 

“Christopher Columbus discovered America in 1492”

Yeah, pretty sure it was already there and didn’t just appear. (Yes, people ‘discovered’ it before him but you get the point!)

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2 hours ago, Michael_3165 said:

Just a quick mention...

Whilst autism has increased over the years due to awareness, there are other issues that look like autism and these can make diagnosis very tricky. E.g. trauma history, personality disorder etc. 

What is the point you're trying to make with this "quick mention"?

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We've speculated a few times that our youngest daughter may be autistic. A few things stand out about her that make us think it's worth getting her assessed. Especially her emotional reaction to things, her incredible memory and her definitely being smarter than expected at her age. Obviously it's a challenge to know what to do next or whether we'd even be headed down the right track with it. School has never mentioned anything but we're sure she's pretty good at masking it all during the day and it all comes out post-school with us.

The weird thing for me is that a lot of what we're seeing in her is stuff I've gone through myself but never even considered to be anything worth getting assessed or discussed with anyone.

So I don't know. Sorry, this is quite a vague and speculative post and hopefully it doesn't seem like I'm trying to jump to any conclusions. It's quite a scary thing to open up dialogue about. I guess I just want to do the right thing by our daughter whatever that may be.

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1 hour ago, DavidB6937 said:

We've speculated a few times that our youngest daughter may be autistic. A few things stand out about her that make us think it's worth getting her assessed. Especially her emotional reaction to things, her incredible memory and her definitely being smarter than expected at her age. Obviously it's a challenge to know what to do next or whether we'd even be headed down the right track with it. School has never mentioned anything but we're sure she's pretty good at masking it all during the day and it all comes out post-school with us.

The weird thing for me is that a lot of what we're seeing in her is stuff I've gone through myself but never even considered to be anything worth getting assessed or discussed with anyone.

So I don't know. Sorry, this is quite a vague and speculative post and hopefully it doesn't seem like I'm trying to jump to any conclusions. It's quite a scary thing to open up dialogue about. I guess I just want to do the right thing by our daughter whatever that may be.

Be prepared to fight. The school need to recommend an assessment, going to a Doctor alone isn’t enough once they are in school. Speak to her teachers, raise your concerns. The first few years of school are daughters teachers didn’t notice anything, but that’s because they didn’t listen/understand what to look out for. When she had a teacher who did, it all changed.

That was our experience, obviously other councils/parts of the country may be different. Statistically girls are often missed for diagnosis as they mask better as well. I wish you luck.

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We faced a bit of push back from the school. The teachers were great but the headmaster was very much in the frame of acting like autism is a flavour of the month and wouldn’t make any recommendations. My girls mum paid for a private assessment. I’m guessing it’s a combination of there being potential faff with having extra children with additional needs and that old school mentality. 
 

My personal favourite retort to “Didn’t have xyz back in my day” is “Yeah and paedophiles were just eccentric old men.” Kills them in their tracks because their dinosaur brain can’t retort without fear of thinking they’re on the side of peeds. More than happy to stoop to their idiotic level.

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On 2/19/2023 at 10:51 AM, Mr_Danger said:

We faced a bit of push back from the school. The teachers were great but the headmaster was very much in the frame of acting like autism is a flavour of the month and wouldn’t make any recommendations

That’s absolutely shite and I’m sorry you’re facing that. Without excusing the headmaster at all, I wonder if his intransigence has anything to do with young people actively seeking an autism diagnosis because they see it as a must have trendy character trait to have? Doesn’t mean genuine cases should be forgotten about because he’s fed up with all the self diagnosed. 
 

Hooe it works out for you, buddy. 

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A referral for diagnosis should still be medical I.e  through your doctor in most areas. However a referral for an EHCP and extra support will need to come through school in most instances. They will need to gather evidence for this and it can take a long time before they will make a referral. The wait list once a referral is made is generally enormous, 2 years in the last local authority I worked n and 18 months in my current one - that's just to get seen, the assessment itself also takes about 6 months. If any of you are considering getting your children assessed I would urge you to do it before they get to secondary school as the waits become a lot worse - you are usually a lower priority than primary aged kids.

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15 minutes ago, deathrey said:

A referral for diagnosis should still be medical I.e  through your doctor in most areas. However a referral for an EHCP and extra support will need to come through school in most instances. They will need to gather evidence for this and it can take a long time before they will make a referral. The wait list once a referral is made is generally enormous, 2 years in the last local authority I worked n and 18 months in my current one - that's just to get seen, the assessment itself also takes about 6 months. If any of you are considering getting your children assessed I would urge you to do it before they get to secondary school as the waits become a lot worse - you are usually a lower priority than primary aged kids.

Thats all correct, but at least for us, the doctor said we needed to get the school to raise a referral, or atleast that a child should be seen for a diagnosis, before we could even start that process. Again that may vary by local authority, but it is why we had the issues we did with our eldest.

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Parents or carers can request an EHCP by themselves but it obviously won't get very far without input from schools or professionals involved with the children. My 14yo and 15yo's didn't take too long from start to finish (about 3 months each) but, again, that could be dependent on your local authority.

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I used to feed in to the school reports for EHCP's, whilst you absolutley can self refer, without the schools support and evidence, you won't get anywhere. Even with the school's support it can be an incredibly difficult to get one - though some L.A's are much better than others with this.

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