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Autism


Nick Soapdish

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16 hours ago, Keith Houchen said:

Well to put it bluntly, he doesn’t think you can do the job in that case and you shouldn’t have to train anyone to do it. 

Either that, or he thinks you're the best person to train them up - in which case, it's a specialised and valuable position that he should make into a new job, and pay you commensurately more for it, especially if you're doing it in addition to the regular job.

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Well i night ninja covid tested my son last night as per usual and he tested positive. Im negative but booked a PCR to make sure. He has a bit of a snotty nose but otherwise seems fine. School are sending a pcr over today. Cant say that wont be a fight.

Supposed to be taking him away for a week on Friday to. Now hes stuck in doors for 10 days. Thankfully i got his jab weeks back which im sure is helping. 

If anyone is doubting the double jab, how i am not infected being his main carer and being covered in snot and being in a car with him over the last week is amazing. 

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Just felt the need to dump this in here.

Took my son out the local shops to do some last minute shopping. I get to one and they have a huge sign out front EVERYONE MUST WEAR A MASK. I take note of it see a old lady in the shop waiting. Its only a small shop so i decide to wait outside as the old lady would no doubt freak out seeing my son with no mask. 

Ive got mine on and im waiting, the lady leaves i shout though the door "hi mate is ok to come in? he cant wear a mask" 

The reply was....."no id rather he didn't........i will serve you outside" 

Needless to say i told where to stick it and left making a point of disgusting it was that he has barred disabled and exempt people from his shop. 

I got no problem with people asking if he can wear one but this was a bit to much. If i had stuck around im sure he would have uttered "he does not look disabled" All the while hes humming loudly with his fingers in his ears and standing on top toes.

I trust no one else has come across this?

 

 

Edited by quote the raven
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21 minutes ago, quote the raven said:

Just felt the need to dump this in here.

Took my son out the local shops to do some last minute shopping. I get to one and they have a huge sign out front EVERYONE MUST WEAR A MASK. I take note of it see a old lady in the shop waiting. Its only a small shop so i decide to wait outside as the old lady would no doubt freak out seeing my son with no mask. 

Ive got mine on and im waiting, the lady leaves i shout though the door "hi mate is ok to come in? he cant wear a mask" 

The reply was....."no id rather he didn't........i will serve you outside" 

Needless to say i told where to stick it and left making a point of disgusting it was that he has barred disabled and exempt people from his shop. 

I got no problem with people asking if he can wear one but this was a bit to much. If i had stuck around im sure he would have uttered "he does not look disabled" All the while hes humming loudly with his fingers in his ears and standing on top toes.

I trust no one else has come across this?

 

 

Thankfully not, but he is breaking the law by doing that.

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49 minutes ago, quote the raven said:

Just felt the need to dump this in here.

Took my son out the local shops to do some last minute shopping. I get to one and they have a huge sign out front EVERYONE MUST WEAR A MASK. I take note of it see a old lady in the shop waiting. Its only a small shop so i decide to wait outside as the old lady would no doubt freak out seeing my son with no mask. 

Ive got mine on and im waiting, the lady leaves i shout though the door "hi mate is ok to come in? he cant wear a mask" 

The reply was....."no id rather he didn't........i will serve you outside" 

Needless to say i told where to stick it and left making a point of disgusting it was that he has barred disabled and exempt people from his shop. 

I got no problem with people asking if he can wear one but this was a bit to much. If i had stuck around im sure he would have uttered "he does not look disabled" All the while hes humming loudly with his fingers in his ears and standing on top toes.

I trust no one else has come across this?

Really sorry to hear this. Is there any local like shop association or something that you could inform? It's probably just a case of them being ignorant (which is no excuse obviously, but hopefully rather that than just a complete arsehole) but it'd be good to be able to inform them and raise awareness so it doesn't happen to anyone else.

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I sent them a PM via their social media page explaining my disgust and asking him if all children/exempt people where banned. 

The response was awfully muddled. 

1. he didnt hear me say he cant wear one? 

2. he was protecting my son from the old lady? 

3. He has vulnerable people at home? 

4. He offered to serve us outside. 

5. Hes trying his best.

I should add hes the owner of said shop. I would suggest that if he is worried then maybe everyone should be kept outside. I suspect he knows hes fucked up still didn't say sorry tho.  

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I don't know whether anybody else struggles with this, but when I'm on an early shift I have to be up at 4am.i get to bed at 9pm, in the hopes that even if it takes me an hour to get to sleep I can ideally get 6 hours, but at about 1-2am I find myself waking up because I'm too warm? I'm sleeping under a pretty thin blanket in short pyjamas and it's not exactly the warmest weather at the moment. I do tend to be warm more than cold as well in general. 

I got a weighted blanket for Christmas. I haven't been able to use it yet because it's heavier than I was allowed to lift after my hernia op, but now I'm worried that I'm going to be even warmer under that. 

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After 5 years of trying to get support for a diagnosis, we finally had our appointments for an Autism assessment for my daughter. Two appointments with 3 different people and reports from school and other support and she has now got a confirmed diagnosis. Big relief for us and my daughter who is now able to at least start to understand or explain a lot of questions she had with herself. Unfortunately we now need to get the school to support her who are notorious in the area for being awful towards kids with any disabilities, but at least she only has another full year left before she will be off to secondary school. 

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6 minutes ago, Hannibal Scorch said:

Two appointments with 3 different people and reports from school and other support and she has now got a confirmed diagnosis

That’s great you had that support. My partner got a diagnosis after 30 years and we think it was mainly down to having a wonderful GP who wrote a support letter. She was diagnosed after one online meeting and after that, the GP dropped neutrality and listed why she believed my partner was autistic. She went through what flagged it up for her and couldn’t believe these were missed. 

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9 minutes ago, Keith Houchen said:

That’s great you had that support. My partner got a diagnosis after 30 years and we think it was mainly down to having a wonderful GP who wrote a support letter. She was diagnosed after one online meeting and after that, the GP dropped neutrality and listed why she believed my partner was autistic. She went through what flagged it up for her and couldn’t believe these were missed. 

A good doctor is essentially, unless you have some willing to fight for you. My doctor dismissed me about 4 years ago by telling me, you seem to be coping, so you don't need a diagnosis as you won't get any financial help (which isn't something i'd considered or even wanted) and dismissed my daughter as having an autistic brother she was probably copying him. Except, he is non verbal with global development delay and she by all intents and purposes would seem nurotypical. But my wife fault with the school and pediatricians for her to be seen, and the less well she was able to mask (one of the things they called out in her final assessment) her issues, the more they helped to get her seen. Honestly, without my wife's support we wouldn't have got anywhere near the help they both now will get. She's phenomenal. Awful taste in men seems to be her only weakness.

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3 minutes ago, Hannibal Scorch said:

A good doctor is essentially, unless you have some willing to fight for you. My doctor dismissed me about 4 years ago by telling me, you seem to be coping, so you don't need a diagnosis as you won't get any financial help (which isn't something i'd considered or even wanted) and dismissed my daughter as having an autistic brother she was probably copying him. Except, he is non verbal with global development delay and she by all intents and purposes would seem nurotypical. But my wife fault with the school and pediatricians for her to be seen, and the less well she was able to mask (one of the things they called out in her final assessment) her issues, the more they helped to get her seen. Honestly, without my wife's support we wouldn't have got anywhere near the help they both now will get. She's phenomenal. Awful taste in men seems to be her only weakness.

Our doctor explained how it’s essentially a triage system that has a long waiting list. A combination of lack of funding and more awareness surrounding autism in women and girls leading to more people seeking a diagnosis leads to the waiting lists. So having supporting letters from professionals helps lift you up the list. 
 

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My girlfriend really seems to be more comfortable in her own skin since her diagnosis but one thing she’s noticed in the online groups she’s in is the amount of people self diagnosed. 
 

Now, it’s not so much the self diagnosing that I find distasteful, it’s appropriating a disability.  It’s them saying “I’m autistic” as opposed to “I think I’m autistic”. I’m told self diagnosing is a good step on your journey to getting a proper diagnosis, but it’s like these people have made it part of their identity. To the point where a number of them have been told by medical professionals that they don’t have ASD but they refuse to accept it. They’ll accept the other things the experts say, such as they have ADHD but they aren’t happy until they’re diagnosed with ASD. Some are even going private because the three times they’ve gone through the NHS they haven’t got the result they wanted. 
 

I know it’s a bit old man yells at cloud but why self diagnose a disability and a neurological condition? I mean if someone said they had Parkinson’s because they read a blog and did an online test, I’d tell them to get a professional opinion. 
 

I also understand that someone may not want to go through the stress and hassle, and of course the waiting time to get diagnosed and that’s fine, totally up to them. I just don’t think they should say they’re autistic. Getting diagnosed means you can access the help and officially be recognised which opens up assistance. 
 

I can’t help but think that a small amount of people are appropriating neuro diversity because they don’t want to be “Normal”. 

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